Essential 22q Books
Wrightslaw: From Emotions to Advocacy, second edition will teach you how to plan, prepare, organize and get quality special education services. In this comprehensive, easy-to-read book, you will learn your childs disability and educational needs, how to create a simple method for organizing your childs file and devising a master plan for your childs special education. You will understand parent-school conflict, how to create paper trails and effective letter writing. This book includes dozens of worksheets, forms and sample letters that you can tailor to your needs. Whether you are new to special education or an experienced advocate this book will provide a clear roadmap to effective advocacy for your child. You will use this book again and again.
Paperback: 311 pages * Publisher: Harbor House Law Press, Inc.; 2 edition (January 1, 2006) * Language: English * ISBN-10: 1892320096 * ISBN-13: 978-1892320094
Nationally recognized expert on autism advocacy Areva Martin shares her hard-won knowledge as a parent of an autistic child and an individual rights attorney. In The Everyday Advocate, she lays out vital and relevant step-by-step instructions to parents facing the seemingly impossible odds of advocating for a child with autism.
Parents need to become activists for their children's rights to services and learn how to safeguard those rights-both in school and in the larger outside world. An invaluable resource, The Everyday Advocate offers practical, real-world actions that work, lists helpful websites and organizations, and gives parents and caregivers the emotional support they need as they face the challenge of successfully standing up for children with special needs.
About the Author
Areva Martin, Esq. is a nationally recognized expert on autism advocacy who has appeared on Dr. Phil, Good Morning America, and FOX News, and has counseled hundreds of parents of autistic children.
Hardcover: 336 pages * Publisher: NAL Hardcover (April 6, 2010) * Language: English * ISBN-10: 0451230213
Decision maker, provider, advocate, encourager, disciplinarian, teacher. As a parent of a child with special needs, you wear many hats. Every day you face difficult decisions about education, health care, financial planning, and more. With so many unique issues to deal with, you need a comprehensive guide to help you:
* Make decisions about education
* Choose the best method of discipline
* Handle problems at school and with peers
* Plan for your child's future
* Make time for your own well being
There is help out there--in fact, there is more support for children with special needs than ever before--you just need to know where to look for it. With this guide, you'll have the information you need to help your children live life as fully as they can--each and every day.
About the Author
Lynn Moore (O'Fallon, IL) is an experienced special education teacher and freelance writer. During her more than twenty years in the field of education, she has worked with families of children with a wide variety of special needs. Ms. Moore has a BSEd in special education, as well as certification in early elementary education, and is a certified learning behavioral specialist. She is also certified to work with children who are deaf or hard of hearing. Ms. Moore writes the special needs parenting column for Suite 101.com.
Paperback: 320 pages * Publisher: Adams Media (September 18, 2009) * Language: English * ISBN-10: 1605501638 * ISBN-13: 978-1605501635
"...This book will fill a void in the libraries of families... help parents ask the right questions..." -- Karen J. Golding-Kushner, Ph.D., Executive Director, VCFS Educational Foundation, Inc.
"...for families and healthcare providers. This should help the families cope with complex issues and systems." -- Martha Frisby - MHA-Children's Rehabilitation Services-St. Joseph's hospital, AZ "This essential handbook offers the reader an insightful look at the pivotal issues concerning 22q11 deletions..." -- Paul Ling Tai M.D, author, surgeon, chemist, and inventor. Michigan
"What a wonderful resource!!... Readers will find this book heart warming, enlightening and uplifting. " -- Clare B. Jones, Ph.D. author, diagnostic specialist, and nationally recognized presenter. Scottsdale, AZ
Paperback: 576 pages * Publisher: Desert Pearl Publishing (July 2004) * Language: English * ISBN-10: 097453580X * ISBN-13: 978-0974535807
For parents looking for ways to strengthen their marriage, prevent future strife, or resolve or move on from significant relationship difficulties, this guide offers guidance and expertise for taking the next step. Married with Special-Needs Children is also invaluable to mental health professionals, giving them a realistic view of what many of their clients are dealing with on a day-to-day basis.
About the Author
In addition to raising three children, Laura E. Marshak, Ph.D., is a professor of counseling at Indiana University of Pennsylvania. She also maintains a private psychology practice and sees many parents of children with disabilities. She lives in Pittsburgh, Pennsylvania.
Fran P. Prezant, M.Ed., CCC-SLP, is a nationally certified speech and language pathologist, parent trainer, and researcher on disability issues. Currently she is Director of Research and Evaluation at Abilities! (formerly National Center for Disability Services), a non-profit organization dedicated to the full participation of people with disabilities in society. She lives with her husband and two adult children in West Orange, New Jersey.
Both authors have written extensively on disabilities issues and co-authored Disability and the Family Lifecycle (Basic Books).
Paperback: 352 pages * Publisher: Woodbine House; 1 edition (January 5, 2007) * Language: English * ISBN-10: 1890627100 * ISBN-13: 978-1890627102
MORE THAN A MOM addresses the universal concerns and questions of all mothers, coupled with the added intensity of raising children with disabilities. This how-to guide looks at the challenges mothers face at home, at work, and within themselves, with special attention paid to:
Staying healthy both physically and emotionally;
Maintaining your marriage;
Nurturing interests and goals;
Seeking flexible work options;
Changing careers or starting a business;
Rejoining the workforce;
Finding specialized childcare;
Advocating for your child.
The mothers who were interviewed for the book have diverse backgrounds and family dynamics. Given their differences and the fact that their children have such varied disabilities, it s striking that these mothers face such similar issues. MORE THAN A MOM provides mothers with many voices and solutions that will resonate with their own circumstances. Husbands, extended family, friends, support organizations, and service providers will also want to read this insightful and fact-filled book.
Paperback: 487 pages * Publisher: Woodbine House; 1 edition (April 30, 2006) * Language: English * ISBN-10: 1890627518 * ISBN-13: 978-1890627515
Velo-cardio-facial Syndrome (VCFS) is a genetic disorder caused by the deletion of part of chromosome 22. It occurs in approximately one in 4000 births and there are now more than 100 physical phenotypic features reported. VCFS affects every major system in the body and this is the first book to describe its full clinical impact. It has been authored by leading international VCFS clinicians/researchers. The focus is on clinical issues with chapters devoted to psychiatric disorders (with the sufferer showing very high levels of schizophrenia), neuroimaging, speech and language disorders, as well as cardiac, ENT, gastrointestinal, ophthalmic and urological manifestations. Molecular genetics, immunodeficiency and genetic counselling are also covered, and practical approaches to diagnosis and treatment described. As VCFS is seen as a paradigm for other microdeletion disorders, this book will not just appeal to clinicians seeing VCFS patients, but also to those with interests in other genetic disorders.
Hardcover: 256 pages * Publisher: Cambridge University Press; 1 edition (July 11, 2005) * Language: English * ISBN-10: 0521821851 * ISBN-13: 978-0521821858